Psychological Well-Being and Care Giver Burden of Parents Having Child with Leukemia
Psychological Well-Being & Care Giver Burden of Parents
DOI:
https://doi.org/10.54393/tt.v4i1.108Keywords:
Psychological Wellbeing, Care Burden, LeukemiaAbstract
Leukemia is one of most prevalent type of cancer among the children with age less than 15 years. Worldwide, Leukemia represents 32.5% of all types of cancer among the children. In Pakistan, 46.5% child with cancer diagnosed with leukemia. Both the mother and father are involved in the direct and indirect care of their child with leukemia Direct care is the tasks with the care of the child with leukemia and indirect care is the financial support and the facilities provided to the patients. Objective: To determine the psychological wellbeing and Care burden among parents having Children with Leukemia. Methods: A cross-sectional study designed was used. A sample of n=81 participants was recruited from Sadiq Abbasi Hospital Bahawalpur, through convenient sampling. The psychological wellbeing and care burden questionnaires were used to measure care burden and psychological wellbeing among parents having children with leukemia. Filled questionnaires were entered and analyzed through SPSS version-21. Results: Findings revealed that 71.60% participants had poor psychological wellbeing, 18.51% had fair and only 38.27% had good wellbeing during their children leukemia care. Similarly, 12.34% had low care burden, 38.27% had moderate and majority 49.38% were having high care burden. Conclusions: Majority of the parents of children with leukemia in this study were having high care burden and poor psychological wellbeing while taking care of their children
References
Ward ZJ, Yeh JM, Bhakta N, Frazier AL, Atun R. Estimating the total incidence of global childhood cancer: a simulation-based analysis. The Lancet Oncology. 2019 Apr; 20(4): 483-93. doi: 10.1016/S1470-2045(18)30909-4
Shamsi A, Azizzadeh Forouzi M, Iranmanesh S. Psychosocial risks among parents of children with cancer. Journal of Pediatric Nursing. 2016 Apr; 2(3): 44-55.
Siegel RL, Miller KD, Goding Sauer A, Fedewa SA, Butterly LF, Anderson JC, et al. Colorectal cancer statistics, 2020. CA: A Cancer Journal For Clinicians. 2020 May; 70(3): 145-64. doi: 10.3322/caac.21590
Force LM, Abdollahpour I, Advani SM, Agius D, Ahmadian E, Alahdab F, et al. The global burden of childhood and adolescent cancer in 2017: an analysis of the Global Burden of Disease Study 2017. The Lancet Oncology. 2019 Sep; 20(9): 1211-25. doi: 10.1016/S1470-2045(19)30339-0
Mirzadeh M, Mirzaei M, ShogaeiFar H. Years of life lost and childhood and adolescent cancer mortality in Yazd Province, Iran (2004-2009). Iranian Journal of Pediatric Hematology And Oncology. 2015 Jul; 5(3): 125.
Qureshi MA, Khan S, Sharafat S, Quraishy MS. Common cancers in Karachi, Pakistan: 2010-2019 cancer data from the Dow cancer registry. Pakistan Journal of Medical Sciences. 2020 Nov; 36(7): 1572. doi: 10.12669/pjms.36.7.3056
Namayandeh SM, Khazaei Z, Najafi ML, Goodarzi E, Moslem A. Global leukemia in children 0-14 statistics 2018, incidence and mortality and Human Development Index (HDI): GLOBOCAN sources and methods. Asian Pacific Journal of Cancer Prevention: APJCP. 2020 May; 21(5): 1487. doi: 10.31557/APJCP.2020.21.5.1487
Khan S, Mir A, Khattak B, Rehman A, Zeb A. Childhood Leukemias in Khyber Pakhtunkhwa and Afghan Children Visiting to Hayatabad Medical Complex Hospital. Arch Can Res. 2017 Aug; 5(3): 149. doi: 10.21767/2254-6081.1000149
Baysal E and Sarı D. Current approaches in oral mucositis prevention, care and treatment in hematopoietic stem cell transplantation: Literature review Hematopoetik kök hücre naklinde oral mukozitin önlemesi, bakımı ve tedavisinde güncel yaklaşımlar: Literatür incelemesi. Journal of Human Sciences. 2016 Dec; 13(3): 5721-39. doi: 10.14687/jhs.v13i3.4036
He M, Zhang B, Shen N, Wu N, Sun J. A systematic review and meta-analysis of the effect of low-level laser therapy (LLLT) on chemotherapy-induced oral mucositis in pediatric and young patients. European Journal of Pediatrics. 2018 Jan; 177: 7-17. doi: 10.1007/s00431-017-3043-4
Scheel BI and Holtedahl K. Symptoms, signs, and tests: The general practitioner's comprehensive approach towards a cancer diagnosis. Scandinavian Journal of Primary Health Care. 2015 Jul; 33(3): 170-7. doi: 10.3109/02813432.2015.1067512
Cornelio SJ, Nayak BS, George A. Experiences of mothers on parenting children with leukemia. Indian Journal of Palliative Care. 2016 Apr; 22(2): 168. doi: 10.4103/0973-1075.179608
Ren Y and Li X. Direct and indirect costs of families with a child with acute lymphoblastic leukaemia in an academic hospital in China: a cross-sectional survey. BMJ Open. 2019 Jul; 9(7): e030511. doi: 10.1136/bmjopen-2019-030511
Ghodsbin F, Asadi N, Javanmardi Fard S, Kamali M. Effect of education on quality of life of family caregivers of children with leukemia referred to the Oncology Clinic at Kerman's Afzali-Poor Hospital (Iran), 2012. Investigacion y Educacion en Enfermeria. 2014 Apr; 32(1): 41-8. doi: 10.17533/udea.iee.v32n1a05
Feki J, Baklouti F, Khanfir A. Assessment of psychological distress among parents of children with cancer. Open Journal of Psychiatry. 2021 Sep; 11(4): 229-47. doi: 10.4236/ojpsych.2021.114019
Bürger Lazar M and Musek J. Well‐being in parents of children with cancer: The impact of parental personality, coping, and the child's quality of life. Scandinavian Journal of Psychology. 2020 Oct; 61(5): 652-62. doi: 10.1111/sjop.12653
Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. Jama. 2014 Mar; 311(10): 1052-60. doi: 10.1001/jama.2014.304
Crespo C, Santos S, Tavares A, Salvador Á. “Care that matters”: Family-centered care, caregiving burden, and adaptation in parents of children with cancer. Families, Systems, & Health. 2016 Mar; 34(1): 31. doi: 10.1037/fsh0000166
Mohamed Mustafa A, Mustafa El-Ashry N, Mahmoud S. Resilience and Psychological Wellbeing among Parents of Leukemic Child at 57357 Hospital. Egyptian Journal of Health Care. 2019 Mar; 10(1): 476-87.
Yu H, Li L, Liu C, Huang W, Zhou J, Fu W, et al. Factors associated with the quality of life of family caregivers for leukemia patients in China. Health and Quality of Life Outcomes. 2017 Jan; 15: 1-1.
Motlagh ME, Mirzaei-Alavijeh M, Hosseini SN. Care burden in parents of children with leukemia: a cross-sectional study in the west of Iran. International Journal of Pediatrics. 2019 Jun; 7(6): 9541-8.
Sherief LM, Kamal NM, Abdalrahman HM, Youssef DM, Abd Alhady MA, Ali AS, Abd Elbasset MA, Hashim HM. Psychological impact of chemotherapy for childhood acute lymphoblastic leukemia on patients and their parents. Medicine. 2015 Dec; 94(51):e2280–e2280. doi: 10.1097/MD.0000000000002280
Wiener L, Viola A, Kearney J, Mullins LL, Sherman-Bien S, Zadeh S, et al. Impact of caregiving for a child with cancer on parental health behaviors, relationship quality, and spiritual faith: Do lone parents fare worse?. Journal of Pediatric Oncology Nursing. 2016 Sep;33(5):378-86. doi: 10.1177/1043454215616610
Arab M, Bernstein C, Haghshenas A, Ranjbar H. Factors associated with caregiver burden for mothers of children undergoing Acute Lymphocytic Leukemia (ALL) treatment. Palliative & Supportive Care. 2020 Aug; 18(4): 405-12. doi: 10.1017/S1478951519000853
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 THE THERAPIST (Journal of Therapies & Rehabilitation Sciences)
This work is licensed under a Creative Commons Attribution 4.0 International License.
This is an open-access journal and all the published articles / items are distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. For comments editor@thetherapist.com.pk