Knowledge and Care Among Mothers Having Children with Cerebral Palsy
Mothers Having Children with Cerebral Palsy
DOI:
https://doi.org/10.54393/tt.v4i1.90Keywords:
Knowledge, Care, Cerebral PalsyAbstract
Cerebral palsy (CP) is a chronic, non-progressive, and incurable disorder that affects mobility and posture. Objective: To assess the Knowledge and Care among mothers having Children with Cerebral Palsy at Nishter hospital Multan. Methods: A cross sectional study designed was used. A sample of n=85 participants was recruited from Nishtar Hospital Multan Pakistan, through purposive sampling. The knowledge and care questionnaire were used for measurement of knowledge and care among mothers having children with cerebral palsy (CP). Filled questionnaires were entered and analyzed through SPSS version 21. Results: Findings revealed that 71.8% participants had poor knowledge regarding CP, 21.2% had fair knowledge and only 7% of participants had good knowledge regarding CP. Similarly, it was revealed that 50.6% participants had poor care, 41.2% had satisfactory care and only 8.2% were having good care for cerebral palsy children. Conclusions: Majority of the mothers of children with cerebral palsy in this study are unaware of the condition and show no concern for it. Support groups may be developed further to increase care giving' awareness of and concern with CP, which may aid them in finding the most suitable and timely interventions for their charges.
References
Baiee ZA, AL-Doori NM, Hassan AA. Mother's Knowledge Towards their Children with Cerebral Palsy in Babylon Province. Indian Journal of Public Health. 2019 Oct; 10(10): 3898-903.
Alruwaished A, Ali B, Alhowaimil L, Alhowaimil A, Alhowaimil AA, Alessa A. Knowledge and attitude of caregivers of cerebral palsy children in Riyadh city. International Journal of Medicine in Developing Countries. 2020; 4(1): 12-7. doi: 10.24911/IJMDC.51-1547833051
Korzeniewski SJ, Slaughter J, Lenski M, Haak P, Paneth N. The complex aetiology of cerebral palsy. Nature Reviews Neurology. 2018 Sep; 14(9): 528-43. doi: 10.1038/s41582-018-0043-6
Karim T, Muhit M, Jahan I, Galea C, Morgan C, Smithers-Sheedy H, Badawi N, Khandaker G. Outcome of community-based early intervention and rehabilitation for children with cerebral palsy in rural Bangladesh: a quasi-experimental study. Brain Sciences. 2021 Sep; 11(9). doi: 10.3390/brainsci11091189
Rafique A and Naz H. A survey-based report on the occurrence of cerebral palsy in Urban areas of Karachi. JPMA. 2020 Mar; 2020. doi: 10.5455/JPMA.28135
Shaunak M and Kelly VB. Cerebral palsy in under 25 s: assessment and management (NICE Guideline NG62). Archives of Disease in Childhood-Education and Practice. 2018 Aug; 103(4): 189-93. doi: 10.1136/archdischild-2017-312970
Dambi JM, Mandizvidza C, Chiwaridzo M, Nhunzvi C, Tadyanemhandu C. Does an educational workshop have an impact on caregivers' levels of knowledge about cerebral palsy? A comparative, descriptive cross-sectional survey of Zimbabwean caregivers. Malawi medical journal. 2016; 28(4): 167-73. doi: 10.4314/mmj.v28i4.4
Polack S, Adams M, O'banion D, Baltussen M, Asante S, Kerac M, et al. Children with cerebral palsy in Ghana: malnutrition, feeding challenges, and caregiver quality of life. Developmental Medicine & Child Neurology. 2018 Sep; 60(9): 914-21. doi: 10.1111/dmcn.13797
Das S, Aggarwal A, Roy S, Kumar P. Quality of life in Indian children with cerebral palsy using cerebral palsy-quality of life questionnaire. Journal of Pediatric Neurosciences. 2017 Jul; 12(3): 251. doi: 10.4103/jpn.JPN_127_16
Moura R, Andrade PM, Fontes PL, Ferreira FO, Salvador LD, Carvalho MR, et al. Mini-mental state exam for children (MMC) in children with hemiplegic cerebral palsy. Dementia & Neuropsychologia. 2017 Jul; 11: 287-96. doi: 10.1590/1980-57642016dn11-030011
Earde PT, Praipruk A, Rodpradit P, Seanjumla P. Facilitators and barriers to performing activities and participation in children with cerebral palsy: Caregivers' perspective. Pediatric Physical Therapy. 2018 Jan; 30(1): 27-32. doi: 10.1097/PEP.0000000000000459
Alsharkawy AT, Draz SF, Hassan GS, Alhofi MA. Effect of Educational Empowerment on Student Nurses' Knowledge, Practice, and Attitude toward Genomic Counselling. Evidence-Based Nursing Research. 2021 Jul; 3(1). doi: 10.47104/ebnrojs3.v3i1.208
Boztepe H, Çınar S, Ay A, Kerimoğlu Yıldız G, Kılıç C. Predictors of caregiver burden in mothers of children with leukemia and cerebral palsy. Journal of psychosocial oncology. 2019 Jan; 37(1): 69-78. doi: 10.1080/07347332.2018.1489441
Branjerdporn N, Crawford E, Ziviani J, Boyd RN, Benfer K, et al. Mothers' perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India. Research in Developmental Disabilities. 2021 Jun; 113. doi: 10.1016/j.ridd.2021.103957
Priyadharishini J, Sadan V, Sebastian T. Community-Based intervention package on knowledge, attitude and selected skills of home care among primary care givers of children with cerebral palsy. Indian Journal of Continuing Nursing Education. 2017 Jul; 18(2): 46-50. doi: 10.5958/2395-180X.2016.00029.3
Hashem SF, Abd El Aziz MA. The Effect of an Educational Intervention for Improving Mothers’ Care for their Children with Cerebral Palsy. International Journal of Nursing Didactics. 2018 Apr 30; 8(04): 10-20. doi: 10.15520/ijnd.v8i04.2126
JACOB D. A Quasi Experimental Study to Evaluate the Effectiveness of the Structured Teaching Programme on the Familial Concerns among the Mothers of the Mentally Challenged Children in the Selected Special Schools in Bangalore, Karnataka. Doctoral dissertation. 2012.
Moenardi MC, Sungkar E, Hawani D. Cerebral Palsy Parents' Knowledge, Attitude, and Behavior at Dr. Hasan Sadikin General Hospital Bandung 2014. Althea Medical Journal. 2020 Jun; 7(2): 84-8. doi: 10.15850/amj.v7n2.1790
Salih EM, Alghamdi SA, Alghamdi RA, Alghamdi MS, Alzahrani TA. Level of Awareness and Attitude Toward Cerebral Palsy Among Parents in Al-Baha City, Saudi Arabia. Cureus. 2022 Nov;14(11):e31791. doi: 10.7759/cureus.31791
Phumudzo R, Shirindi ML, Makofane MD. Mothers caring for children living with cerebral palsy: Suggestions for psycho-social support. Social Work. 2021; 57(3): 359-75 doi: 10.15270/57-3-952
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